In a support group, members provide each other with various types of help, usually nonprofessional and nonmaterial, for a particular shared, usually burdensome, characteristic. The help may take the form of providing and evaluating relevant information, relating personal experiences, listening to and accepting others' experiences, providing sympathetic understanding and establishing social networks. A support group may also work to inform the public or engage in advocacy.

Contents

History

Formal support groups may appear to be a modern phenomenon, but they supplement traditional fraternal organizations A fraternity is a brotherhood, though the term usually connotes a distinct or formal organization. The only true distinction between a fraternity and any other form of social organization is the implication that the members freely associate as equals for a mutually beneficial purpose, rather than because of a religious, governmental, commercial, such as Freemasonry Freemasonry is a fraternal organisation that arose from obscure origins in the late 16th to early 17th century. Freemasonry now exists in various forms all over the world, with a membership estimated at around 5 million, including just under two million in the United States and around 480,000 in England, Scotland and Ireland. The various forms all in some respects, and may build on certain supportive functions (formerly) carried out in (extended) families Family denotes a group of people or animals affiliated by a consanguinity, affinity or co-residence. Although the concept of consanguinity originally referred to relations by "blood," anthropologists[who?] have argued that one must understand the idea of "blood" metaphorically, and that many societies understand 'family'.

Other types of groups formed to support causes, including causes outside of themselves, are more often called interest groups An interest group is an organization that seeks to influence political decisions. This can be done by explaining the benefits of a policy to the relevant politicians, by making financial contributions or incentives, or a combination of the two. Public and private corporations work with lobbyists to persuade public officials to act or vote, advocacy groups, lobby groups, pressure groups or promotional groups. Trade unions A trade union is an organization of workers who have banded together to achieve common goals in key areas, such as working conditions. The trade union, through its leadership, bargains with the employer on behalf of union members (rank and file members) and negotiates labor contracts (Collective bargaining) with employers. This may include the and many environmental groups, for example, are interest groups. The term support group in this article refers to peer-to-peer support.

Maintaining contact

Support groups maintain interpersonal contact among their members in a variety of ways. Traditionally, groups have met in person in sizes that allowed conversational interaction. Support groups also maintain contact through printed newsletters, telephone chains, internet forums, and mailing lists. Some support groups are exclusively online The terms online and offline have specific meanings with respect to computer technology and telecommunication. In general, "online" indicates a state of connectivity, while "offline" indicates a disconnected state. In common usage, "online" often refers to the Internet or the World Wide Web (see below).

Membership in some support groups is formally controlled, with admission requirements and membership fees. Other groups are "open" and allow anyone to attend an advertised meeting, for example, or to participate in an online forum.

Management by peers or professionals

A self-help support group is fully organized and managed by its members, who are commonly volunteers and have personal experience in the subject of the group's focus. These groups may also be referred to as fellowships, peer support groups, lay organizations, mutual help groups, or mutual aid self-help groups.

Professionally operated support groups are facilitated by professionals who do not share the problem of the members,[1] such as social workers, psychologists, or members of the clergy. The facilitator controls discussions and provides other managerial service. Such professionally operated groups are often found in institutional settings, including hospitals A hospital is an institution for health care providing patient treatment by specialized staff and equipment, and often but not always providing for longer-term patient stays, drug-treatment centers and correctional facilities A prison is a place in which people are physically confined and, usually, deprived of a range of personal freedoms. Other terms are penitentiary, correctional facility, and jail (or gaol), although in the United States "jail" and "prison" refer to different subtypes of correctional facility. Prisons are conventionally. These types of support group may run for a specified period of time, and an attendance fee is sometimes charged.[1]

Types of support groups

In the case of a disease A disease or medical condition is an abnormal condition of an organism that impairs bodily functions, associated with specific symptoms and signs. It may be caused by external factors, such as invading organisms, or it may be caused by internal dysfunctions, such as autoimmune diseases, an identity Cultural identity is the identity of a group or culture, or of an individual as far as one is influenced by one's belonging to a group or culture. Cultural identity is similar to and has overlaps with, but is not synonymous with, identity politics or a pre-disposition, for example, a support group will provide information, act as a clearing-house for experiences, and may serve as a public relations Public relations is the practice of managing the flow of information between an organization and its publics. Public relations gains an organization or individual exposure to their audiences using topics of public interest and news items that do not require direct payment. Because public relations places exposure in credible third-party outlets, voice for sufferers, other members, and their families. Compare Mental Health Stigma Mental health is a term used to describe either a level of cognitive or emotional well-being or an absence of a mental disorder. From perspectives of the discipline of positive psychology or holism mental health may include an individual's ability to enjoy life and procure a balance between life activities and efforts to achieve psychological, Mensa International Mensa is the largest, oldest and best known high-IQ society in the world. It is a non-profit organization open to people who score at the 98th percentile or higher on a standardized, supervised intelligence test. Mensa is formally composed of national groups and the umbrella organization Mensa International and gay pride, for example.

For more temporary conditions, such as bereavement or the problems of ex-cult Cult may popularly refer to a religous group with relatively few adherents whose beliefs or practices are regarded by others as strange or sinister members, a support group may veer more towards helping those involved to overcome or move "beyond" their condition/experience.

Some support groups and conditions for which such groups may be formed are:

On-line support groups

Since at least 1982, the Internet The Internet is a global system of interconnected computer networks that use the standardized Internet Protocol Suite to serve billions of users worldwide. It is a network of networks that consists of millions of private and public, academic, business, and government networks of local to global scope that are linked by copper wires, fiber-optic has provided a new and successful venue for support groups. Discussing on-line self-help support groups as the precursor to e-therapy, Martha Ainsworth notes that "the enduring success of these groups has firmly established the potential of computer-mediated communication to enable discussion of sensitive personal issues."[2]

E-mail lists provide information and emotional support

Support groups have long offered companionship and information for people coping with diseases or disabilities, and on-line situationally oriented groups have expanded to offer support for people facing various life circumstances, especially those involving personal and cultural relationships.

Diverse remote networking formats have allowed the development of both synchronous groups, where individuals can exchange messages in real time, and asynchronous groups, where members who are not necessarily simultaneously connected to a network can read and exchange messages. E-mail Electronic mail, often abbreviated as email or e-mail, is a method of exchanging digital messages, designed primarily for human use. E-mail systems are based on a store-and-forward model in which e-mail computer server systems accept, forward, deliver and store messages on behalf of users, who only need to connect to the e-mail infrastructure,, Usenet Usenet, a portmanteau of "user" and "network"[citation needed], is a worldwide distributed Internet discussion system. It evolved from the general purpose UUCP architecture of the same name and Internet bulletin boards An Internet forum, or message board, is an online discussion site. It originated as the modern equivalent of a traditional bulletin board, and a technological evolution of the dialup bulletin board system. From a technological standpoint, forums or boards are web applications managing user-generated content have become popular methods of communication for peer-to-peer self-help groups and among facilitated support groups.

Appropriate groups still difficult to find

A researcher from the University College London says the lack of qualitative directories, and the fact that many support groups are not listed by search engines can make finding an appropriate group difficult.[3] Even so, he does say that the medical community needs "to understand the use of personal experiences rather than an evidence-based approach... these groups also impact on how individuals use information. They can help people learn how to find and use information: for example, users swap Web sites and discuss Web sites."

It is not difficult to find an online support group, but it is hard to find a good one. In the article What to Look for in Quality Online Support Groups, John M. Grohol gives tips for evaluating online groups and states: "In good online support groups, members stick around long after they've received the support they were seeking. They stay because they want to give others what they themselves found in the group. Psychologists call this high group cohesion, and it is the pinnacle of group achievement."[4]

Benefits and pitfalls

Several studies have shown the importance of the Internet in providing social support, particularly to groups with chronic health problems.[5] Especially in cases of uncommon ailments, a sense of community and understanding in spite of great geographical distances can be important, in addition to sharing of knowledge.

Online support groups, online communities for those affected by a common problem, give mutual support and provide information, two often inseparable features. They are, according to Henry Potts of University College London, "an overlooked resource for patients." Many studies have looked at the content of messages, while what matters is the effect that participation in the group has on the individual. Potts complains that research on these groups has lagged behind, particularly on the groups which are set up by the people with the problems, rather than by researchers and healthcare professionals. User-defined groups can share the sort of practical knowledge that healthcare professionals can overlook, and they also impact on how individuals find, interpret and use information.[6]

Marc D. Feldman of the University of Alabama at Birmingham has warned about sympathy-seekers who invade Internet support groups.[7] He calls it Munchausen Münchausen syndrome is an outdated term for psychiatric disorders known as Factitious disorders wherein those affected feign disease, illness, or psychological trauma in order to draw attention or sympathy to themselves. It is also sometimes known as hospital addiction syndrome or hospital hopper syndrome by Internet. People can invent or induce fictitious illnesses in themselves or others in an effort to gain sympathy. He alleges that these storytellers can have an enormous impact on online support groups. Among other things, Dr. Feldman says, they can:

Support groups in popular media

See also

References

  1. ^ a b APA Dictionary of Psychology, 1st ed., Gary R. VandenBos, ed., Washington: American Psychological Association, 2007.
  2. ^ Ainsworth, Martha. "E-Therapy: History and Survey". http://www.metanoia.org/imhs/history.htm. Retrieved 2008-04-15.
  3. ^ Potts, Henry W. W. ([2005]). "Online support groups: An overlooked resource for patients" (PDF). University College London. http://eprints.ucl.ac.uk/archive/00001406/01/Online_support_groups.pdf. Retrieved 2008-03-30.
  4. ^ Grohol, John M. (updated May 2004). "What to Look for in Quality Online Support Groups". http://psychcentral.com/archives/support_groups.htm. Retrieved 2008-04-15.
  5. ^ Powell, John; Aileen Clarke (2002). "The WWW of the World Wide Web: Who, What, and Why?" (guest editorial). Journal of Medical Internet Research 4 (1): e4. doi:10.2196/jmir.4.1.e4. http://www.jmir.org/2002/1/e4. Retrieved 2008-04-15.
  6. ^ Potts, Henry W. W. ([2005]). "Online support groups: An overlooked resource for patients" (PDF). University College London. http://eprints.ucl.ac.uk/archive/00001406/01/Online_support_groups.pdf. Retrieved 2008-03-30.
  7. ^ Morelli, Jim, RPh. "Sympathy-Seekers Invade Internet Support Groups". HealthyPlace.com. http://www.healthyplace.com/site/article_faking.asp. Retrieved 2008-03-30.

External links

Categories: Support groups | Self-care | Types of organization | Personal development | Grief

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